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PatientsLikeMe
http://www.patientslikeme.com/ PatientsLikeMe PatientsLikeMe is committed to providing a better, more effective way to capture valuable results and share them with patients, healthcare professionals, and industry organizations that are trying to treat the disease. In 1998, a young carpenter named Stephen Heywood was diagnosed with ALS. The Heywood family began taking charge of Stephen's care, searching the world over for ideas that would extend his life and improve the way he lived. This set in motion a series of events that have led to PatientsLikeMe, a new system of medicine by patients for patients. We're here to give patients the power to control their disease and to share what they learn with others. We're here to help you. Our goal is to enable people to share information that can improve the lives of patients diagnosed with life-changing diseases. To make this happen, we've created a platform for collecting and sharing real world, outcome-based patient data (patientslikeme.com) and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits. |
 
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Jamie Heywood: The big idea my brother inspired
http://bit.ly/bx5ah0 |
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Evidence-Based Nutrition Practice Guideline
http://bit.ly/bAFTNF Critical Illness (CI) Evidence-Based Nutrition Practice Guideline This guideline is designed so that you can access key information quickly and easily. The information is organized into the following categories: Introduction, Major Recommendations, Algorithms, Background Information and Reference List. |
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Acute care: Recognising critical illness
http://archive.student.bmj.com/issues/04/01/education/12.php Acute care: Recognising critical illness In the first part of our series about acute medicine, Nicola Cooper describes how to recognise a critically ill patient "In the beginning of the malady it is easy to cure but difficult to detect, but in the course of time, not having been either detected or treated it becomes easy to detect but difficult to cure." |
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School students and chronic illness
http://bit.ly/92ArqV School students and chronic illness - finding support ... Policy in Victoria Australia |
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Industry list of all 37 critical illnesses:
http://www.gia.org.sg/pdfs/Health/Common_Definitions.pdf Industry list of all 37 critical illnesses. |
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